Jan 23, 2015

All About Me

Hi and welcome to my blog.  I'm Tricia and I live in the beautiful state of Maryland.

I'm so glad you found my little space on the web where I share my journey with Lyme, homeschooling and my deep faith in God.

I decided to start a blog after much prodding and nagging, uh um, I mean encouraging from family, friends and even people I didn't really know, who insisted I share my story and experience living with chronic tick-borne disease.

I've been married to my handsome husband, Scott, for 26 years now.  I got married when I was 2 in case you were wondering my age.

Together we have four children who are now 21, 19, 16 and 9. Our two oldest have graduated from our homeschool and our youngest two will continue on.




Our whole family was diagnosed with Lyme disease, Bartonella, and Babesia and a host of other things back in 2009. Because testing is so inaccurate and doctors are not trained to understand the complexities of tick-borne diseases, it took me 2 years to get a diagnosis and another several years to get each of my children diagnosed. You can read more details in My Story.

My purpose here is to share my experience with Lyme disease in the hopes that this will be encouraging and informative. Lyme disease can be a devastating disease and my hope is that the information here will help you to be educated so that you can protect yourself and your family or get the help you need.

If you are struggling with chronic health problems life can be very discouraging and lonely.

Sometimes having a place to turn where you can connect, even in some small way, can give you the encouragement you need to keep going, make necessary changes and to not just survive your challenges but to thrive in them, to learn how to come to a place of healing.

I am a born again believer in Jesus Christ.  You will find my faith and trust in Him is at the core of who I am.  I hope this won't be offensive to you or keep you from spending time here and getting to know me.

I'd like this to be a place where you can find helpful information and encouragement.  My journey has everything to do with what God has been doing in my life.

This is why I named my blog Abounding in Hope, because with God, through it all we can abound in hope in the darkest of times.


Finally, please understand that I am not a doctor or a health professional in any way.  


I am however, a research junkie and health advocate and I feel very strongly that unless we take our health seriously and understand our own body knowing how it works, then we will not get better.

I hope you find what I share helpful and encouraging.




14 comments:

  1. Tricia, I'm so glad you're in the blogosphere! Your candor, humor, faith, perseverance, and experience will bring hope to others as they read about your Lyme journey. Bravo!

    ReplyDelete
    Replies
    1. Thanks Alison that is my whole purpose for this blog! You have inspired me to join in as a fellow blogger.

      Delete
  2. Hi Tricia,

    I was very happy to find your blog! Our stories are very similar. I am a homeschooling mom with 6 kids (6-22), married to my husband for 26 years, and I grew up in western MD. We currently live in TN, but my family is still in MD. Myself, my husband, and 4 of our 6 children are dealing with Lyme. The two that aren't dealing with it did have bulls-eye rashes that were successfully treated immediately by a LLMD. I thought about starting a blog like this, but am not quite well enough yet to take on such a task. I look forward to getting to know you better. I'm in the midst of trying to plan our next school year (6yo, 8yo w/Lyme,Bart,RMSF, 10 yo w/Lyme, 17 yo - she is the one most sick with Lyme). It's hard because before I got sick, I loved our school time. I like the Charlotte Mason/Classical approach, but that can be a lot of work. Trying to figure out how to do this. Anyway, thanks again for your blog!

    ReplyDelete
    Replies
    1. By the way, sign-up for new blog posts through email or follow me on facebook. :) https://www.facebook.com/aboundinginhopewithlyme

      Delete
    2. Tricia, thanks for your words of encouragement! I am in Maryland as well. I am not CDC positive. I am IGM IgeneX positive with bands 31, 34, 41, 58, 83~93, and IND on band 39. Even though I am not positive for IGG I have bands 18, 41, 58, and IND for bands 34 and 39. I have been ill knowingly for about a year. Like you, I do not know exactly when I got it. Funny, I pulled a tick off of me the second day of living in Maryland. He was holding a WELCOME sign. Ha! I have seen several doctors with a doctor in Annapolis being the most helpful but he is not ILADS trained. I am about to contact Dr. K.S. in Towson who wrote a great book on Lyme and has helped several of my friends. I sure would love to know who you have had success with! One question. Were you all CDC positive?

      Delete
    3. Hi Spiffy and welcome. No we were not CDC positive but like you had several positive bands. Send me an email and I can share with you the doctors we've seen and who we're seeing now.

      Delete
  3. Welcome to my blog Mama Me! I'm so glad you found my blog. I am sorry though to hear that you have tick-borne infections. I put off blogging for a long time but My health is much better now and two kids have graduated so I thought it was a good time.
    I hope you visit often, I'll be sharing more about our journey & homeschooling. God Bless! Tricia

    ReplyDelete
  4. Hi Tricia,
    I am so thankful to have found your blog last week. I cry when I read it because I realize I am not alone. We started homeschooling 6 years ago when my then 4th grade daughter got so sick she could not attend school. Each year has been a struggle with her health & the decline of my health & my 2 younger children. August 2013 her health took a turn for the worse and by December I had 3 children with Epstein Barr, Strep & the flu. My health then got worse & by Feb. all 4 us were diagnosed with Lymes. We have spent the last year and a half making trips to the doctor & trying to heal & rebuild our immune systems. My daughter should be a 10th grader this year but has done very little school in the last year & a half. My now 7th grader is about a year behind & my 3rd grader is not reading & having vision & neurological problems. I'm having to start back with Kindergarten math & reading because of memory loss she has experienced. I've been so overwhelmed trying to figure out where I go from here. Do you have any suggestions on how I learn to weed out the fluff in my curriculum? I'm mostly concerned about figuring out high school. How can she catch up when the curriculum is so overwhelming & she has so many days she can't focus? I would love to know more about nontraditional schooling & how to count it as credit. Wishing now that I had known how long term this would be. I would have kept records of all the hours we've spent watching history & science on tv & video and studying health & nutrition in order to get healthy. Thank you and bless you for sharing your story, Kimberly

    ReplyDelete
    Replies
    1. Hi Kimberly, I'm so glad you found my blog. I'm always grieved to hear that others are struggling the way we have but I'm here to tell you that things can get better. I've written several pieces on my blog about homeschooling when chronically ill. I would start with a piece of paper, a pencil and your Bible. Get with God and seek Him for what He wants for your family and specifically for your children's education. Next make a list of things that your children absolutely need to know in order to function well after school. Remember that those things can be learned at any time. It's a little more complicated for High School because there are requirements for earning a credit, depending on your State and your oversight. My Favorite Online Homeschooling Encouragement post (http://aboundinginhopewithlyme.blogspot.com/2015/12/my-favorite-online-homeschooling.html) will give you a few valuable resources for figuring this all out. One is Lee Binz, The HomeScholar; HSLDA is fantastic and if you'd like to learn about Delight Directed learning without all the fluff read some of Mary Hood's materials. I think her blog is www.archersforthelord.org. Always remember that your family is unique and what works for one family may not work for yours. We included our illness as a part of our curriculum. We learned about our illness which was definitely Science (Biology), we learned about special diets and foods and included this as a Health/Nutrition course, my girls designed their own exercise routines and implemented them and I included that as their 1/2 credit PE. Keep those lists of educational shows, websites, books, audio books (our favorite) and even trips to the doctors. Ask the nurses and doctors questions for the sake of your children and have them write an essay. There are so many things that don't require a lot of time or energy that you can incorporate into your educational program. I would just encourage you to take each day as it comes, don't stress yourself or your children out and just do what you can do. Hugs, Tricia

      Delete
  5. Hi Tricia,
    My friend and I are reading your information and have a few questions as to whether or not she might have Lyme disease. Marg visited the US approximately 20 years ago and stayed in LA. She became very ill after a day trip to Tijuana and a had to have a doctor visit her at the hotel who diagnosed her as having been bitten by a tick from redness and tracking and gave her antibiotics. She has been significantly unwell in all the years since. She struggles with very random illness that is often significant, recently suffering from numbness and tingling with headaches, suspected MS but no confirmed diagnosis. Her bloods show raised ANA readings and there is current issues with various symptoms that are similar to those you describe. Our question is, How would she go about diagnosing whether she has Lyme and is it even possible for it to be Lyme all these years later?

    ReplyDelete
  6. I forgot to mention that we live in New Zealand and the issue of Lyme disease would be very rare and unknown here.

    ReplyDelete
    Replies
    1. Hi Wendy, as you know, I'm not a doctor but as someone who has lived with this disease I would advise you to find a doctor who can run the appropriate testing. I'm not familiar with New Zealand's medical care but you could contact ILADS through my blog "Find a Doctor" and see if they can recommend someone. Many holistic doctors can determine whether you have tick-borne disease through alternative tests like muscle testing. I believe Dr. Horowitz suggests that an elevated ANA is commonly caused by a Babesia infection or an overstimulated immune system due to the Lyme, but it's often misdiagnosed as Rheumatoid Arthritis or MS. A tick generally never just transmits Lyme so you must consider the many coinfections. I'm so sorry your friend has been ill but thankful that you found my blog. I'll pray for her. Thanks for reaching out.

      Delete
  7. Hi I'm looking for a little guidance. My 4 year old and I both have Lyme. We are scheduled to go to the Envita Medical Center down in Scottsdale Az. Does anyone have experience with Envita?
    Thanks
    Lauren

    ReplyDelete
    Replies
    1. Hi Lauren, I'm so sorry to hear about you and your daughter. I'm not able to comment about Envita, I don't have any experience with them. You could join a Facebook Lyme group and ask there. I'm sure you could get some feedback there. God bless, Tricia

      Delete

Note: Only a member of this blog may post a comment.